I broke down in tears the first time I read the Spoon Theory of Chronic Illness in 2013. Because of a rare brain disease, I’d just lost my job, I was a fraction of the wife and mother I used to be, and all I knew was migraines and fear.
But I looked fine, so people didn’t understand why I was falling apart. Prescriptions numbed my brain more than the pain, so every attempt to explain myself only ended in tears.
But the Spoon Theory of Chronic Illness gave my desperation a voice. Finally, my family understood the need to balance my activity level like a welfare budget.